What is the WFH day

World Hemophilia Day

April 17th has been World Hemophilia Day since 1989. World Hemophilia Day, which is supposed to inform about the hemophilia.

history

As early as 1989, the World Hemophilia Day was launched by the World Federation of Hemophilia (WFH) with the aim of providing information about this hereditary disease and promoting global networking.
The chosen date, April 17th, goes back to the birthday of Hans Schnabel, who founded the WFH in 1963 and is officially recognized by the WHO.1

Hans Schnabel himself was affected by the hemophilia and when it was founded, he formulated the goal of achieving an improvement for those affected in order to decisively improve their quality of life. Formerly founded as a non-profit organization, it now represents the interests of member associations from over 134 countries.

regional customs

The WFH calls annually Motto from, which should publicly address the various aspects of the disease:

  • 2007: Improve Your Life!
  • 2008: Count Me In.
  • 2009: Together, We Care.
  • 2010: The Many Faces of Bleeding Disorders - United to Achieve Treatment for All.
  • 2011: Be Inspired, Get Involved in Treatment for All.
  • 2012: Close the Gap.
  • 2013: 50 Years of Advancing Treatment for All.
  • 2014: Speak out. Create change.
  • 2015: Building a family of support.
  • 2016: Treatment for All, The Vision of All.
  • 2017: Hear their voices.
  • 2018: Sharing Knowledge makes us stronger.
  • 2019: Outreach and Identification.
  • 2020: Get + involved
  • 2021: Adapting to Change

Annually takes place WFH World Congress instead, which deals with the various focal points and aspects of the disease.1

What is hemophilia

Hemophilia is an inherited blood disease in which blood clotting is disturbed and the blood from wounds does not clot or only slowly clots. Men are affected more frequently than women. Spontaneous bleeding with no visible sores is also common. Colloquially, those affected are referred to as hemophiliacs.

The danger is that affected people lose significantly more blood than healthy people. Even a small cut that is covered with a plaster is a danger for those affected without appropriate medical treatment. The importance of the treatment is shown by the fact that without a functioning blood clotting, even the smallest injuries can lead to bleeding to death.2

Similar holidays

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  1. History WFH (wfh.org)
  2. What is hemophilia (apotheke.or.at)